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What We Provide

 

Midwest Heart Connection (MHC), a 501c3 nonprofit organization, provides support for children and adults with CHD. We raise awareness of CHD in the community and support research and education in pediatric cardiology.

We have over 2,000 members and supporters from all across the U.S. however our primary focus continues to be the families affected by CHD right here in the Midwest region.  With over 500 member families throughout the area we believe it’s important to help these families make the connection with us, other families in the CHD community, and medical professionals.   Midwest Heart Connection continues to be a free membership organization because a majority of our funding each year comes from the generosity of individuals in the communities throughout the region and corporate philanthropy.

Our Programs:

Subsidizing the cost of attending Camp Braveheart of Nebraska, a week long summer camp exclusively for children with congenital heart disease.

Family Matching for members who want to connect with others with similar diagnoses and/or in the same area

Creation and distribution of care kits for each pediatric heart patient as they enter Children’s Hospital & Medical Center – Omaha for heart surgery.  - Kits contain a Bummer Bear (www.bummerbears.com) and essential items for lengthy hospital stays, coloring pages and activities for children, area and hospital information – local restaurants, etc., toiletry items, pens/note pads and information about MHC and Congenital Heart Disease (CHD)

Family connection events for members of MHC that can include annual seasonal outings to a baseball game, a fall festival at a local pumpkin patch and a banquet during congenital heart disease awareness week each February and many more throughout the year..

National Pediatric Cardiology Quality Improvement Collaborative, a national research program focused on dramatically improving the outcomes for children with cardiovascular disease. Midwest Heart Connection is a proud travel sponsor of parents chosen to participate in this innovative research. (www.jcchdqi.org)

Continuing Education Fund for medical professionals choosing to expand their knowledge and training in the treatment of congenital heart disease

Children’s Hospital & Medical Center – Omaha Heart Station Sponsor, the clinical treatment area of the hospital where CHD patients undergo testing and evaluation of their congenital heart disease

Monthly inpatient family meals are provided at no cost to families of those in the hospital being treated for congenital heart disease

Complimentary in hospital professional photography session for newborns diagnosed with congenital heart disease and their family

Monthly support group and/or play group gatherings for members and families of MHC to gather, connect and enjoy the company of other CHD families

Grants to medical institutions seeking funds for specialized medical equipment or activities used in the treatment or support of congenital heart disease

MyCHDLog is a mobile iOS application to help provide parents of critically ill children an electronic option for logging vital health data often required by their medical teams (mychdlog.org)